Registered: Nov 2012
Location: Logansport, IN
Posts: 344

The doctors are recommending an additional surgery before he goes for the big surgery. Chris's feet because of the tightness in his legs point almost straight down. Its very common for this to happen. My girls feet are the same way. They want to correct that by cutting the Achilles Tendon on each ankle to release the tension and correct his feet. They feel fixing this before he goes in for the SDR surgery will help him walk faster after the SDR surgery is done. He goes in for this procedure sometime in December, and after all the healing and therapy is done they can start looking at a date for the SDR surgery.

Thanks guys

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Registered: Aug 2005
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Praying for him

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Registered: Feb 2007
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PRAYERS FROM THE RIVERBOTTOM FOR THIS LITTLE GUY

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ALWAYS REMEMBER GOD GAVE US FRIENDS AND COONHOUNDS, " I AM A GREATLY BLESSED",HIGHLY FAVORED" " IMPERFECT BUT FORGIVEN CHILD OF GOD "KEEP YOUR {FAITH IN GOD } FAITH SEES THE INVISIBLE,BELIEVES THE INCREDIBLE,AND RECIEVES THE IMPOSSIBLE. WERE BLESSED !!

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Registered: Apr 2004
Location: Whitesburg, Kentucky
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Prayers for little man!

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Registered: Feb 2006
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Prayers of comfort and healing from just above the Beaver River.

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Registered: Jun 2003
Location: Tennessee
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Keep us posted on his progress John, see you soon.

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Registered: Mar 2006
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We will be praying for a Good Outcome!

Sincerely, Heather and Bob William

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Praying for Chris

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Registered: Jun 2006
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There's Angels among us, I believe Chris is an Angel, he brought strangers together that will now be lifelong friends that work together, Thanks for the update as he remains in our prayers..

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Registered: Nov 2012
Location: Logansport, IN
Posts: 344

Thanks guys, & I'll try to keep everyone as posted as I can. It's not going to be an over night fix for the guy. He has a lot of hard work ahead of him, but I think he will do great. You are exactly right Tim. Chris & all the kids like him are angels. 100% innocence in these kids. They are amazing kids that show nothing but pure love & joy. We take our kids trick or treating every year to a group home for kids like Chris & Kaira. Every year we want to put them all in the car & take them home with us too. It's amazing the impact these kids can have on you. Our kids have all been touched by our little Kaira that will make them better people their entire lives. They actually will go out of their way to be kind to people & especially special needs kids. Our teenage girl will even stand up for kids when she sees one of them being picked on, & if it doesn't stop I guess the bully might have to show how tough they are lol. Kaira has 2 sisters that now want to be special needs teachers, & her teenage sis wants to be a speech pathologist. Shoot, she has even caused me & her mom to take the plunge back into school for Physical Therapy degrees so we can help them out as much as we can. Seriously, if y'all see a special needs kid out somewhere, just stop for a second to talk to them. You might not think they understand, but they do. They love the attention & when they crack that smile you will understand & I promise you will even feel good yourself. They are all heart!!!!

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Registered: Nov 2007
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Hey man. PT is fun and i enjoy what i do, but i don't know that i could work on my own kids sometimes. It would be hard mentally because the stretching stuff does not feel good at all. I have a lady now where i work that had the achilles cut for plantar tightness. Stretching just wasn't working. The big thing is when they are laying in bed they need some kind of progressive stretching boot so that don't tighten back down when they sleep. The stretching part after the release is tough but gotta be done. A slow prolonged stretch is always better than a fast quick stretch. Will help nothing. Good luck. He can do it but it will prob be a bit before he could possibly stand on them. Takes a bit too heal. That's a thick tendon!

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Registered: Nov 2012
Location: Logansport, IN
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I didn't know you were a PT!!!! Yeah I'm not real sure how they plan to treat Chris post-op. I know for Kaira they were wanting to do an adductor release in her legs to help with her scissoring. Her last X-rays showed her hip joints coming out a little, but she isn't in any pain yet. They were going to put her in a cast from her waist down to promote better healing. Not sure if we are going that route yet or not. We have to get her in first for a surgery to straighten out her little crooked eye lol. She just got approved for an eye gaze communication board & they said if it's fixed, less chance of an error on the board. It's always 1 thing right after another it seems like. That communication board is awesome though. It's going to open up a whole new world to Kaira & everyone involved with her. Her speech therapist just told us the other day that she wants Kaira in a regular classroom next year. Said she's a really bright little girl, & she's just trapped in a body that won't let her express herself. Sure wish there was a home remedy for CP lol.

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Registered: Nov 2007
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Yeah man you and a bunch of folks. My wife is an Occupational Therapist as well. CP is tough. The kids/people are usually intelligent, but like you said they are just trapped in there and no way to express themselves correctly. Those communication boards/computers are really nice and increase their abilities to communicate with everyone around them. Had a guy that had a stroke that that had the computer one. It would help him let us know the bathroom stuff, meals, and whatever else he needed. It was nice. THey get so frustrated because we have no idea what they want, but with that, it helps to keep them from getting frustrated.

You really have to watch the adductors, esp in girlies, because of the cleaning situation. They can and will get tighter and tighter and seems like overnight, you can't hardly help them clean after bathroom situations. She have an abductor wedge to use when laying down to maintain her range that she has?

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Gene Raines
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Gone But Never Forgotten: PKC Silver Champion($5444 won); UKC GR. Nt. Ch. 'PR' Raines' Rockytop Kansas TRUSTY (3 Generation All Grand)
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Registered: Nov 2012
Location: Logansport, IN
Posts: 344

Thats cool your wife is an OT too!!!! That was what i was originally going to go for, but the lack of schools put a stop to that. PT was hard enough to find a school for. The program im going through is a PTA program with a bridge school to PT. I have a year in already, but had to change schools for my PTA so I start back in March.

Yeah, Kaira has a wedge. You think we should try to let her sleep with it? Im hoping that her tone isnt to bad that we cant reverse it some without surgery, but she is pretty tight. Kaira is one of those hard ones to work with though. She is mix toned, high in the arms & legs, but low in the neck & trunk. Another thing that is weird about her is that some days her tone isnt that bad and other days you can't hardly move her arms and especially legs. Her fighting you for fun doesnt help either, lol. When you are trying to change her, put her in the car seat, or about anything as that goes she will stiffin up her back and arch. She knows she is keeping us from doing what we have to do, and she will just laugh her little butt off at you. She will quit laughing for a second and calm down like she is going to cooperate and then just arch again and start laughing even harder because she knows it aggrivates you lol.

She is on 3ml's of valium 2x a day and suppose to move up to 3x real soon. That is it for meds except a little prilosec & miralax. We tried Baclofen, but that was a major no go. It had a really bad adverse affect on her and actually tightened her up so bad that she was stiff as a board all over nonstop, was really twitchy, and cried or screamed all the time. It wasnt for her at all.

Let me know what you think on the wedge, and if you have any other ideas about how we might help her tone a little bit in her legs. Are you coming up here for kill season? I thought you said something about it while you were up for B&T days, but cant remember for sure.

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Registered: Mar 2006
Location: Massachusetts
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Hearing you all talk about the PT and OT etc.. brings back some long lost memories to me. I'll start off by saying I'm mildly brain injured now so I forget some stuff from my past but... I was a riding instructor and for a part of my career a Therapeutic riding instructor. If you all have access to GOOD therapeutic riding programs the passive stretching that happens when one sits on a horse/pony is GREAT stuff. I wont say more about it cause I actually forget so much.. I do know the kids and adults we worked with also LOVED the contact with the horses... of course I know I did.
Anyway... it was cool to read about you all getting so involved in PT and OT etc.. you are all angels in my book!
Continued prayers, Heather

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Registered: Nov 2012
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We actually looked into the horse therapy for Kaira. There is a girl we know that is a lot like Kaira only older that did really well with it. Her dad said it was unreal how well it worked. When Kaira gets a little further along we plan on trying it out. I'm always open to new things & have actually been doing a lot of research on stem cell treatments here lately.

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Registered: Nov 2007
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My wife did some clinicals for that stuff while she was in school. She said she loved it and the kidos really did respond well to it. As far as the wedge goes, if she sleeps on her back and will let you put the wedge in, then yeah it will help with a slight progressive stretch. However, you want it where it is applying a slight light stretch for that long of a period of time. If it is too much of a stretch, she will 1) fight it, 2) not sleep well in it. If she rolls around in bed to her side, stomach, ect., it won't allow for much of that and she will hate it. Anyhow, yes it will prevent increased tightness, esp in the AM if she will allow it to stay in, but rest for her is also important. You know her better than I and it would be a trial any error.
Oh, and if you try it and she leaves it in place, when she gets up in the morning and you take it out, make sure it's not causing skin issues or redness that won't go away. Good luck.

Dunno about the hunt. Talked to Jordan the other day. I would love too, but just got back from WH, and have pro hunt next week. If work not horrible Friday, I may try to get up Sat or something. Take care man. See you guys soon.

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Gene Raines
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PKC Silver Champion $5000+ Won; (Never in a UKC hunt) GR CH 'PR' Raines' Trusty II AKA "Thunder" (Trusty X Ox Female(Callie))

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Registered: Nov 2012
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Cool, thank a lot man.... I think she will tolerate it. She dont roll around hardly at all, and she fights sleep until the point she cant fight it no more. She dont want to miss anything so when she shuts down it dont matter what position she is in. She could be standing on her head and i think she'd fall asleep lol. Yeah if you can shoot up here saturday. Our weather is suppose to be decent this weekend. Steven Smith is coming up next week to go with me and it looks like its going to be pretty cold when he comes. Highs in the 30s lows in the low 20's. You could get here before that nasty cold weather gets here. Its a good time, hope you can make it. We tree a lot of coons those first few weeks. The ritual feast Cobles put on is pretty good too, opening night of kill season is a holiday in Coble country lol.

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Registered: Nov 2007
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LOL Sounds good! Thunder prob needs to chew on some of those furs before they skin and stretch them lol. Would fire him up for pro hunt the next weekend I'm sure. Them Cobles are something else. Jordan says he wants a female out of this x-cross I made with this crazy thing of mine.

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931-319-0588
Raines' RockyTop Kennels
Home of:

PKC Silver Champion $5000+ Won; (Never in a UKC hunt) GR CH 'PR' Raines' Trusty II AKA "Thunder" (Trusty X Ox Female(Callie))

Gone But Never Forgotten: PKC Silver Champion($5444 won); UKC GR. Nt. Ch. 'PR' Raines' Rockytop Kansas TRUSTY (3 Generation All Grand)
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Registered: Nov 2012
Location: Logansport, IN
Posts: 344

What X cross did you make? I'm planning on trying it down the road if my little female makes it. I want to cross her on Harry Bawls

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